Scientific Symposium (Webinar)

All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium!  This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky  to have collaborated with Children's Hospital Boston, MIT, Rett Syndrome Research Trust, RSO and the University of [...]

October 21st, 2020|Categories: Uncategorized|

He is my heart

Hello Rett Families meet one of our board members Tracy mom to three precious children, her son has a diagnosis of Rett Syndrome.  RSAM is pleased and honored to announce her first blog, WAY TO GO TRACY!  As a board we felt it was important to learn more about boys living with Rett Syndrome.  We hope you enjoy Tracy's blog as much as we do! "I was asked a week [...]

September 14th, 2020|Categories: Blog, News, Uncategorized|

October is Rett Syndrome Awareness Month

October is R ett S yndrome A wareness M onth and boy do we have plans.  Our Quaranteam has been hard at work and we are honored and thrilled to roll out ALL FOUR events for Rett Awareness Month.  This pandemic isn't stopping RSAM from making Rett History!   We need families from around the world to help make our October 24th virtual World Family Celebration come to life.  For the [...]

September 11th, 2020|Categories: Uncategorized|

October Is Rett Syndrome Awareness Month

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females. Although males can also be affected, most do not survive to childhood. It is rarely inherited, but can randomly strike any expectant family, regardless of race or ethnicity.

November 27th, 2018|Categories: News|Tags: , |

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