Hello Rett Families meet one of our board members Tracy mom to three precious children, her son has a diagnosis of Rett Syndrome. RSAM is pleased and honored to announce her first blog, WAY TO GO TRACY! As a board we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy's blog as much as we do! "I was asked a week ago if would consider posting on the RSAM family blog about raising a male with Rett Syndrome. I immediately said, probably no, as I feel like I am always the one yelling [...]
“The families don't give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!