A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
“The families don't give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year
Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females. Although males can also be affected, most do not survive to childhood. It is rarely inherited, but can randomly strike any expectant family, regardless of race or ethnicity.