News Archives » Rett Syndrome Association of Massachusetts

He is my heart
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He is my heart

Ivan Gatewood2020-10-17T09:02:04-04:00

Hello Rett Families meet one of our board members Tracy mom to three precious children, her son has a diagnosis of Rett Syndrome. RSAM is pleased and honored to announce her first blog, WAY TO GO TRACY! As a board we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy's blog as much as we do! "I was asked a week ago if would consider posting on the RSAM family blog about raising a male with Rett Syndrome. I immediately said, probably no, as I feel like I am always the one yelling [...]

He is my heartIvan Gatewood2020-10-17T09:02:04-04:00

RSAM Latest News
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RSAM Latest News

Ivan Gatewood2020-08-28T17:20:28-04:00

As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.

RSAM Latest NewsIvan Gatewood2020-08-28T17:20:28-04:00

Letter from Dr. Lieberman Concerning Covid-19
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Letter from Dr. Lieberman Concerning Covid-19

Ivan Gatewood2020-05-04T09:04:35-04:00

Boston Children’s Hospital is continually re-assessing the situation and providing updates.

Letter from Dr. Lieberman Concerning Covid-19Ivan Gatewood2020-05-04T09:04:35-04:00

Guardianship Tips and Process

Ivan Gatewood2020-02-26T15:28:38-05:00

A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

Guardianship Tips and ProcessIvan Gatewood2020-02-26T15:28:38-05:00

Rett Family Picnic
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Rett Family Picnic

Ivan Gatewood2020-09-08T23:55:02-04:00

Coming Late Summer 2020

Rett Family PicnicIvan Gatewood2020-09-08T23:55:02-04:00

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

Ivan Gatewood2020-01-14T10:29:37-05:00

“The families don't give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s HospitalIvan Gatewood2020-01-14T10:29:37-05:00

Boston Marathon: Thank you to all our Team Rett Runners!

Ivan Gatewood2019-04-17T17:03:36-04:00

Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.

Boston Marathon: Thank you to all our Team Rett Runners!Ivan Gatewood2019-04-17T17:03:36-04:00

The Day We Met Dr. Rett
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The Day We Met Dr. Rett

Ivan Gatewood2019-04-16T18:33:49-04:00

My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!

The Day We Met Dr. RettIvan Gatewood2019-04-16T18:33:49-04:00

Taking steps towards Rett syndrome awareness: Blue Sky Day
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Taking steps towards Rett syndrome awareness: Blue Sky Day

Ivan Gatewood2018-11-29T09:11:57-05:00

Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year

Taking steps towards Rett syndrome awareness: Blue Sky DayIvan Gatewood2018-11-29T09:11:57-05:00

October Is Rett Syndrome Awareness Month
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October Is Rett Syndrome Awareness Month

Ivan Gatewood2018-11-27T10:41:13-05:00

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females. Although males can also be affected, most do not survive to childhood. It is rarely inherited, but can randomly strike any expectant family, regardless of race or ethnicity.

October Is Rett Syndrome Awareness MonthIvan Gatewood2018-11-27T10:41:13-05:00