He is my heart

2020-10-17T09:02:04-04:00

Hello Rett Families meet one of our board members Tracy mom to three precious children, her son has a diagnosis of Rett Syndrome.  RSAM is pleased and honored to announce her first blog, WAY TO GO TRACY!  As a board we felt it was important to learn more about boys living with Rett Syndrome.  We hope you enjoy Tracy's blog as much as we do! "I was asked a week ago if would consider posting on the RSAM family blog about raising a male with Rett Syndrome. I immediately said, probably no, as I feel like I am always the one yelling [...]

He is my heart2020-10-17T09:02:04-04:00

October Is Rett Syndrome Awareness Month

2018-11-27T10:41:13-05:00

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females. Although males can also be affected, most do not survive to childhood. It is rarely inherited, but can randomly strike any expectant family, regardless of race or ethnicity.

October Is Rett Syndrome Awareness Month2018-11-27T10:41:13-05:00
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