Guardianship Tips and Process

2020-02-26T15:28:38-05:00

A Parent’s Journey:   Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

Guardianship Tips and Process2020-02-26T15:28:38-05:00

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

2020-01-14T10:29:37-05:00

“The families don't give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital2020-01-14T10:29:37-05:00

October Is Rett Syndrome Awareness Month

2018-11-27T10:41:13-05:00

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females. Although males can also be affected, most do not survive to childhood. It is rarely inherited, but can randomly strike any expectant family, regardless of race or ethnicity.

October Is Rett Syndrome Awareness Month2018-11-27T10:41:13-05:00