He is my heart

2020-09-14T09:25:09-04:00

Hello Rett Families meet one of our board members Tracy mom to three precious children, her son has a diagnosis of Rett Syndrome.  RSAM is pleased and honored to announce her first blog, WAY TO GO TRACY!  As a board we felt it was important to learn more about boys living with Rett Syndrome.  We hope you enjoy Tracy's blog as much as we do! "I was asked a week ago if would consider posting on the RSAM family blog about raising a male with Rett Syndrome. I immediately said, probably no, as I feel like I am always the one yelling [...]

He is my heart2020-09-14T09:25:09-04:00

October is Rett Syndrome Awareness Month

2020-09-11T10:16:17-04:00

October is R ett S yndrome A wareness M onth and boy do we have plans.  Our Quaranteam has been hard at work and we are honored and thrilled to roll out ALL FOUR events for Rett Awareness Month.  This pandemic isn't stopping RSAM from making Rett History!   We need families from around the world to help make our October 24th virtual World Family Celebration come to life.  For the past nine years our Blue Sky Day program honored children and adults living with Rett syndrome.  The highlight of the program was the participation of each individual with Rett syndrome ascending [...]

October is Rett Syndrome Awareness Month2020-09-11T10:16:17-04:00
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