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BLUE SKY DAY

 WORLD FAMILY CELEBRATION! 

 

This one is one to remember…..

Once again, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST.

 

Join in our virtual observance this year will be families from around the world who are also facing the challenges of living with Rett Syndrome. 

We invite families from around the world to join us in this celebration of our amazing children. There are two ways families can participate. We need your help to make this day amazing!  The festivities will include videos/photos how amazing our rett angels are the tradition of honoring our children in a very personal way from around the world.

       

TIME TO CELEBRATE OUR ANGELS!

 VIEWING INFORMATION: 

10:30am united states

(Eastern Standard Time) 

https://us02web.zoom.us/j/89371240017?pwd=TGMrRmlPWWs5VTZBUUY5MVNzcmUwdz09
Passcode: family
Or iPhone one-tap :
US: +13017158592,,89371240017#,,,,,,0#,,327783# or +13126266799,,89371240017#,,,,,,0#,,327783#
Or Telephone:
Dial(for higher quality, dial a number based on your current location):
US: +1 301 715 8592 or +1 312 626 6799 or +1 646 876 9923 or +1 669 900 6833 or +1 253 215 8782 or +1 346 248 7799 or +1 408 638 0968
Webinar ID: 893 7124 0017
Passcode: 327783
International numbers available: https://us02web.zoom.us/u/kcFl9RdwI9

                                             

Did you know Boston has continued on this event for ten consecutive years despite many challenges? Not even a Pandemic is going to stop us! It all started  as Blue Sky Girls with an idea from  Dr. Sasha Djukic from the Rett Clinic/ New York to have families from all over the world gather at the same time and climb stairs.

“Each year in October the Blue Sky Girls was an event that is celebrated at multiple sites around the world. The purpose of the event is to celebrate Rett Syndrome Month and the strength and will that girls with Rett Syndrome have shown to keep going no matter the odds and the difficulties they face every minute of their lives.

Climbing stairs is a symbolic gesture, because climbing takes you upward and forward even if it is difficult.”  Just the past recent years, the name changed to Blue Sky Day as more boys have been diagnosed with this disorder.

The Boston Children’s Hospital Rett Program Team celebrating Blue Sky Day at our Purple Sky Night themed selfie station 2019.

 

Contact us: rettsyndromemassachusetts@gmail.com 

 

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