Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area. Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates, medical and therapeutic interventions, Massachusetts specific programs & services, school and communication strategies. Program Subject to Change WHEN | Saturday, June 22, 2019 WHERE | Boston Children's Hospital, 1 Autumn Street, Boston, MA 02215 [...]
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year